British woman who baffled doctors with rare eating disorder passes away

Tia-Mae McCarthy, the British woman whose early years defied medical understanding, has died at the age of 26. McCarthy, known internationally for surviving the first decade of her life without eating any food orally, was found unresponsive in her bed on April 28. Her cause of death is currently unknown, and post-mortem tests are underway to determine what led to her sudden passing.

McCarthy’s life story garnered widespread attention and was featured in the 2006 documentary The Girl Who Never Ate, after she made medical history for being sustained solely through nighttime tube feeding until the age of 10.

“There was nothing abnormal. She had a bit of a cough, but was otherwise well,” said her brother, Din McCarthy, 22, speaking to The Telegraph.

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A life marked by resilience and medical mystery

Born 12 weeks premature and weighing less than one kilogram, Tia-Mae was diagnosed with oesophageal atresia — a rare congenital condition that affects approximately one in every 40,000 births. The disorder left her esophagus unconnected to her stomach, requiring a life-saving operation at just three months old to surgically bridge the gap.

For much of her first year, she lived in and out of hospitals. Though her condition was corrected surgically, her refusal to eat persisted. Doctors, unable to identify a physiological explanation, speculated whether psychological trauma contributed to her condition.

“She stopped breathing multiple times as a baby,” her mother, Sue McCarthy, once said, suggesting the terrifying episodes in infancy might have shaped her daughter’s long aversion to eating.

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A turning point at 10 — and a new relationship with food

In an unconventional and controversial move, the McCarthys turned to a specialist in Austria, whose treatment involved controlled food deprivation. While the approach raised ethical concerns, it appeared to yield a breakthrough.

Tia-Mae began showing interest in food shortly after, and in December 2012, the feeding tube was removed. By the age of 15, she was eating normally. Despite her remarkable progress, she lived with cognitive and physical disabilities that prevented her from achieving full independence.

“Her mindset was a lot younger than her physical age, so she couldn’t live independently or have a job,” said her brother. “But she had a very full life. She loved horse riding and she was really into her arts and crafts.”

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Death leaves family and experts searching for answers

McCarthy’s sudden death has shocked her family and those who followed her extraordinary life. She had shown no alarming symptoms beyond a mild cough in the days prior. Her family is now awaiting further medical tests to understand the cause.

Tia-Mae’s life — one that challenged scientific assumptions and demonstrated deep personal resilience — remains a testament to human survival against the odds. Her case will continue to resonate with the medical community, raising enduring questions about the intersection of physiology, psychology, and survival.

As her family mourns her passing, the world remembers a young woman whose story offered both bewilderment and inspiration.

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