South African social media influencer inspired millions while living with rare aging disease

Beandri Booysen, a South African TikTok creator who captured hearts worldwide by sharing her life with progeria, passed away at 19. Her mother, Bea Booysen, shared the heartbreaking news on Facebook, calling her daughter “one of South Africa’s most beloved and inspiring young women.”

“It is with deep sadness that we announce the passing of Beandri,” her mother wrote in an emotional post. The family has announced plans to hold a memorial service to honor her life and legacy.

A life of impact

Despite living with Hutchinson-Gilford Progeria Syndrome (HGPS), a rare genetic disorder that causes premature aging, Booysen built a substantial social media following with over 278,000 TikTok fans. Her content, filled with joy and hope, resonated deeply with viewers and raised awareness about progeria and special needs.

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In recent months, Booysen underwent open-heart surgery and had expressed her wish to spend Christmas with her family. She also faced additional health challenges, including osteoporosis and aortic stenosis, a condition that affects blood flow from the heart.

News of her passing has sparked an outpouring of tributes from fans and fellow creators across social media. “So sad. What an inspiration she was. Fly high with the angels, sweet girl,” wrote one supporter on Facebook. Another commented, “Prayers for the family for the loss of such a precious young lady.”

What is progeria?

Progeria is an extremely rare genetic condition, affecting approximately one in four million children worldwide. It is caused by a mutation in the LMNA gene, which produces lamin A, a protein vital for maintaining cellular structure and function.

Most individuals with progeria have a life expectancy of about 14 years, though some, like Booysen, live into their late teens or early twenties. Symptoms include rapid aging, wrinkled skin, hair loss, joint stiffness, and cardiovascular complications. While there is no cure, treatments focus on symptom management, such as:

• Growth hormone therapy
• Cardiovascular medications
• Physical therapy
• Pain management

A lasting legacy

Booysen’s life was a testament to resilience and positivity in the face of overwhelming challenges. Through her TikTok videos and advocacy, she raised awareness of progeria and inspired countless individuals to find strength and hope in their own lives. Her legacy serves as a powerful reminder of the impact one person can have in fostering understanding and spreading joy.